Thursday, January 19, 2012
Today is sad and beautiful...
I found to today (Thursday ) that on Sunday one of my lovely cousins and her beautiful family lost one of there children. As I read the events leading up to the loss I started crying...for two reasons...
1. The sadness they had to go through knowing what was going to happen...
2. The beautiful way they are handling it. The courage and love of their family combined with their faith...are going to be the pillars of strength that will help them get through this tough time.
I feel bad that I haven't stayed in better touch with them over the past few years...I'm about as good at that as blogging...but I want them to know I'm giving them all the love and prayers I can through the universe and beyond, in hopes that it gives them the support they need. I also want to tell them I'm sorry this happened to them and to hold on to each other and the short memories of the time they had to give little Mickey the love, that I'm willing to bet, he knew he already had.
If you read this please offer prayers of peace and love to them and
Wednesday, December 3, 2008
I'm the worst Blogger...but here's an update!
Hugs and love to all!!
spare bedroom
Tuesday, October 14, 2008
WOW more than a month Later?!?!?!
Bedroom 2 is going to be my office and Bedroom 3 is going to be the guest room for which I'm now taking reservations among my family members. Hint Hint.
The drawn in lines are to show the extension that we go as an extra option.
we didn't get the basement bathroom finished but we did finish the big room.
Thursday, September 11, 2008
9/11 and MORE
It took a letter signed by the general of the division I was working for, to have all civilians let on and off the base. I had to get one every day for the rest of the week. I’m sure he didn’t like having to sign all those letters everyday. This morning as I write this, I’m sitting in a staff meeting feeling that the “pause for a moment of silence” was not enough. Today the new memorial at the Pentagon will be unveiled and Clayton and I will stop by some time this week to see it.
7 years later it’s much better news! This week we signed the paperwork for the new house!!! We are having it built in a community development out in Gainseville, VA. It’s about 30 miles West of where we are now. So now we are choosing colors and flooring and siding and all that stuff before they break ground. We are hoping to move in December. I will be adding pictures as we get them. My boss Cathy lives about 3 blocks from where we are building and will be taking pictures throughout the build process.
Let me tell you, for those of you who have bought a house you know how much stress buying a house is. And it’s SCAREY!!!!! I’ve never bought more than a car and now I’m buying a HOUSE! I have, at the age of 47, grown into a little bit more of an adult…Don’t worry tho’ I still haven’t totally grown up…
The latest development health wise is that 2 ½ weeks ago I was helping Clayton put up signs for the Yard Sale we were having and in the dark I stepped into a ditch drain and fractured the right side of my right foot! I’ve been in a walking cast for the past 2 weeks and will continue to do so for 2 more. The Dr. said that it was minor and that it should heal without problems. You have to hear this story.
So 2 hours before we go out to hang up signs, I get a call from my friend Marion, who the day before, had fallen while carrying her grandchild and broke something on each leg/foot and messed up one of her knees. I said that I would come visit her in the hospital over that weekend. Little did I know…So after my accident happened, Clayton asked if I wanted to go to the hospital. I said no let’s just see how my foot is because although it hurt I could limp around so I figured that it wasn’t broken.
Well I laid in bed all night and at 5 a.m. (about the time I knew he planned on getting up and getting ready for the sale) I said to Clayton, “Alright take me to the hospital ER drop me off and go back to the yard sale, and I’ll wait for you to come get me when the help we are expecting arrives” So we did…first of all the helper never showed up…However, at about 6:30 a.m. I was done and I said to the nurse…”You know there is a lady in this hospital that called me 2 hours before this happened and told me she was here and had her own broken bones. So I’m going to go up and visit”! The Nurse was quite helpful…she even helped me up there! So at 6:30 in the morning, I was knocking on her hospital room saying “Wake up lady, it’s your fault this happened you jinxed me”! And from her hospital bed she was laughing her butt off!!!! We chatted until about 10:30 that morning until some friends of mine came by and picked me up and took me home….WOW!!!!
Ever onward…I go back to the Cancer Institute in October for my first follow up after having been told that the Cancer was gone. There will of course be tests and such, but I’m sure all will be fine.
I want to thank everyone again who offered up prayers, help with rides, food, cards and everything else during that time. Clayton and I will never forget the love and support that we got during that time and continue to get occasionally from folks who are just “checking in”. We love you all and give thanks to Higher Power everyday for all of you!
I’m very busy with work now that I’m back full time but only 3 days a week in the office with 2 days of telecommuting. Boy are they glad I’m back the workload has got me maxed out and the meeting is winding down and I now have to go upstairs to my office and get back to work...l8r
Sunday, July 13, 2008
Catching up after a month
Side story!!! While Home I thought I would be the good uncle and take Carson and Ashton along with my sister (their mom) Julie to go see the incredible Hulk movie...Holy Crap Batman!!!! Why didn't anyone tell me not to take two little kids to a movie...I thought it would totally hold their concentration...WRONG!!!!! When we got home my mom and dad looked me straight in the eye and asked how was it? I asked for valium, which had them rolling on the floor with laughter because they new why I wanted it and basically what had happened...the 2 boys then earned the name Crashton...more for that experience than the fact that I could never get their names out right the first time.
Wednesday, June 11, 2008
Puberty???? Again!!!!
So I have 2 radiation treatments left, today and tomorrow...then I'm DONE!!!! I have regular Doctor appointments and such but for the most part I'm DONE!!!! Woo Hoo!!!
Saturday I'm going to leave for UT to stay with my parents for a week and let my mom "Fuss" over me and help me get rid of some of the side affects of treatments. A lot of my family members are coming from different locations to see me which will be great! and I hope to come back feeling much better and in tune with my self. We are also going to be taking a family picture as well. It will also be the first father's day in quite a number of years that I will be home for. I'm already prepared with a fathers day gift to take with me.
You may have read in Clayton's blog that I did have some problem last week with my side where they were doing some of the radiation. But they took an x-ray and couldn't see anything and I think it's starting to go away so I think I just pulled a muscle. They said that things like that could happen during the treatment so for now I think it's OK.
F.A.C.T.S. is really picking up steam!! Thursday we review the first draft of the Non-Profit paperwork and I have already been talking with loads of people on what can be done for fund raisers, putting lists of people together, getting a website put together and even one person is helping me with a List Server for mass e-mailings. So look for things to be happening on this and YOU WILL BE GETTING EMAILS ASKING FOR HELP :-).
The Docs are letting me go back to work part time starting on the 23rd I won't be able to work more than 15-20 hours a week for the next couple of months but I can work from home for most of it and I have a summer intern that I've had for the past 2 years who is back to help so she will be helping me take up some of the slack.
That's about it for now...I'm going to start packing for my trip and my ride should be here in a little while to take me to my treatment (still can't drive by myself until Nov....arrrrggghhh)
Peace out!
Scott
Tuesday, May 27, 2008
Coming out of the Dark
There is a Chinese curse that says "may you live in interesting times" Well up until recently that's what it's been like. And in a lot of ways it will continue that way for a while. So here is the basic gist of what has happened and then I'm going to expand on thought processes simply because I have a lot in my head and I feel that now is the time to get it all out...I'm going to give you some advance warning....this particular blog needs to be written and it won't be pretty. But let me tell you why I'm doing all of this self revelation. Once again I've lived through something that could have killed me and this isn't the first time...But I get ahead of my self...
AND THAT WAS YESTERDAY AND NOW IT'S A NEW DAY. Yesterday I felt like my whole rational world was caving in.
today???
My brain goes on these tangents where no matter how hard I try to see the good in a day I can't. I swear it's because of the pills I'm on but I still have things that need to be answered. Like, why do I survive things that could have/should have probably killed me like Alcoholism, Cancer, Crohns, multiple nut allergies, multiple accidents that I walked away from and should have died and yet I'm still here...Would someone who has an ear to God tell me WHY??? Surely I've got something to do to add to the positive nature of the Universe, I can't just be kept here out of some sick need to see how much Scott can handle!!!
It's now 3 days later....boy am I having trouble writing this....
OK...so now it's Saturday...I've been through a week of radiation treatments. I really don't feel any worse for the wear, just tired and a little bitchy. So for the past couple of days I've tried to get out and get some sun. I'm limited to the time I can be out but the Radiation Oncology unit gave me some SPF25 to put on and I can now stay out a little longer. Nausea is my worst enemy and I hate that sometimes Clayton gets the brunt of my Anger, Pity, moodiness, what ever you want to call it.
So last night the theater company that I'm President of (Clayton is VP but is leaving the board soon) has a show that is up called "House of Blue Leaves" it's a comedy. I needed to laugh, so this time I pushed the envelope a little and had Clayton drop me off and told him to go ahead and go home and I would find a ride home. I needed this little push of Independence since I can't (am not supposed to be) alone because of the seizures. For those of you who don't know; about a month a go I surprised everyone by having a sudden seizure. I woke up in an ambulance trying to answer questions that I was supposed to know the answer for but couldn't remember. Clayton kept his cool but I could tell when he got to the emergency room it scared him to death. So they kept be for a couple of days...sent me home with these new drugs for seizure disorder (which add to the moodiness already involved) and 12 hours later I started throwing up and couldn't stop so I landed back in NIH for 4-5 days.
During this time the Doctors all agreed that it was time to take Scott off of Chemo and put him on radiation treatments. This would keep me from entering the hospital for multiple stays and since it seemed to have done it's job on the grand scale then maybe the pinpointed radiation would help my body heal better.
Anyway I managed to get through the show without incident saw some people I hadn't seen in a while and felt a little more independent. I felt so good in fact that I got up this morning and fixed breakfast for Clayton before he left for rehearsal. I also now don't feel like this weekend while he is at rehearsal is all about Scott being babysat...it's more like just getting to hang with my friends and that the possibility of a seizure has had it's ass slapped back into a corner. I actually started thinking of things to do and clearing out my head. WHICH by the way allowed me to come up with my PURPOSE!!!!!
I'm going to start a non-profit organization called F.A.C.T.S. It stands for Fight All Cancer Through Service. It has been rolling around in my brain for the past week. Clayton and I heard about this little girl in Alexandria (VA) who had to have a kidney removed due to Cancer. The father (who is in Single Father Status) had to quit his job to take care of her and they were having a fund raiser to help support them....This got me to thinking...all the funds raised for Cancer research is great BUT...they don't help out with things like, Rides to the hospital, Food buying or preparation, etc...up to more than a dozen things I could think of...so F.A.C.T.S. is falling into place in my head and starting this weekend I start to put it on paper.
If anyone knows a good pro bono lawyer who will help me with the 501 c 3 paperwork please send them my way and keep an eye out for emails coming your way asking for help. I'm going to want this to be more than a donation type organization...I want to create lists of real people who want to get involved like they did with me. Let's help go grocery shopping, let's take the caretaker and the patient out for dinner if they want or even cook for them...Let's offer to look in and walk the pets...This is more than just throwing money at a situation (even tho' we will need that) this is about coming together and being of service.
Man do I feel better today I really did come out of the Dark.
I love you all for being there and for listening.
S